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Autismap.gr: For a society more autism friendly

Autismap.gr: For a society more autism friendly
SUBMITTED FROM:

Child and Adolescent’s Center

Child and Adolescent΄s Center is the largest non-profit company in Greece based in the province and in fact on the remote island of Chios and one of the most dynamic organizations in the field of mental health in the country. In its 26 years of operation (founded in 1996) it has supported 9,364 children, adolescents, adults with developmental, emotional and psychiatric difficulties and their families. Our vision: A world that talks about mental health comfortably and recognizes, understands and accepts the diversity of people with psychiatric / psychological / developmental disorders.


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Objective Action

Autismap.gr is the first online information portal for autism in Greece. It was created with the aim of supporting the rights and social inclusion of people with autism and their families, enhancing their accessibility to appropriate structures and services as well as combating stigma. In addition, the guide aims at networking services and structures and informing scientists / professionals active in the field of ASD, contributing to their interaction and the improvement of the services provided. The operation of the website is non - profit.

 

Target Audience

The target audience of the website is: 1) People with autism and their families / carers, 2) Health / mental health professionals who support autistic people (doctors, psychologists, speech therapists, occupational therapists, social workers, etc.), 4) Civil society organizations (associations, unions, NGOs) that are active on Autism Spectrum Disorders (ASD), 5) Other professional and scientific groups (researchers, lawyers, lawyers, journalists, social scientists, human resources of central government and local government, etc.), 6) General public.

 

Duration

The website, since its inception, has not stopped developing and listening to the needs of the public to which the vision of its creation is addressed. There is no time limit for the operation of the website.


Description


Autismap.gr is the first and only guide for autism in Greece and is one of the results of the Research Program "Available Resources for People with ASD in Greece" which was designed and implemented by the Urban Non-Profit Company Child and Adolescent Center.
The creation of the website aims to defend the human rights of people with autism and to promote a society of equal opportunities, acceptance and respect.

The goals of autismap.gr include supporting the rights and social inclusion of people with autism, enhancing their accessibility to appropriate structures and services, informing the wider community and combating stigma.

At this stage the website includes: 

A) The presentation of health care providers - mental health, rehabilitation, education, social care and employment: structures and individual professionals, on an interactive map, with geolocation and by provider category (Day Centers, Supported living structures, education, professionals etc.).

B) The existing legislation related to the rights of people with autism, in 6 categories: Basic rights at national, European and global level, Health and Mental Health Services, Education, Social Care, Social Security, Employment. Frequently Asked Questions is used to highlight individual issues and to refine the information provided.

C) Informative articles for the general public: Reputable scientists in the fields of health and education, with many years of research and clinical experience in autism, write articles, presenting scientific information in a way accessible to non-specialists, so that autism is understood and accepted by society.

Our content, in collaboration with other information portals, is enriched with the concerns, views and suggestions of autistic people and their families on health, education and work. In addition, we give a step to the first online newspaper published by people with autism, themates.gr.

Before the operation of autismap.gr there was no similar database, with the available structures and services for people with ASD in Greece, accessible to the general public. Respectively, the relevant legislation was not accessible and concentrated on an organized website while in general the information about autism was spread on the internet.

At the present stage, autismap.gr is at a turning point, from the mapping and presentation of structures, services, legislation and information, which is maintained and increased, proceeds to identify unmet needs and support the development of new services. The planning of new programs for the Promotion of oral hygiene and the supported work of people with autism is moving in this direction, developing a network with bodies that are also active in similar fields (see section Collaboration with another body).

The content of the page is updated regularly and systematically on a monthly basis or more often as needed.
There is no membership fee or subscription for users or any financial transaction with the structures and professionals that are part of the platform.
 


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Impact on Society

1. Autismap.gr is a support tool for people with ASD and their families, so that:
a) to locate the appropriate services quickly, easily and free of charge near their place of residence
b) to make use of the existing legal provisions and to claim their rights and to meet their needs

2. It is an easily accessible and frequently updated database that supports:
a) the networking of services and structures and the information of scientists / professionals active in the field of ASD, contributing to their interaction and the improvement of the services provided.
b) the identification and recording of deficiencies and the rational planning of the necessary services and, more generally, the development of resources at regional and national level.

3. Provides valid information to the community and special groups of the population, in order to promote:
a) combating the stigma and social exclusion of people with ASD and their families
b) social inclusion and, more broadly, social acceptance and coherence.

4. Identifies deficits and promotes the development of new services to improve the quality of life and social inclusion of people with ASD.

5. Supports the advocacy for the human rights of autistic people
To date, the page has been visited by more than 180,000 users, more than 1,500 private and public structures serving people with ASD have been mapped and posted, while within one year since the creation of the "Articles" section, 21 articles have been posted.

During the last year in which the website was significantly renewed and enriched, there was an increase in user traffic by 95% compared to 2020 (116,723 vs. 59,678) as well as an increase in the length of stay on the website by 5%. The most popular sections of the website are:
• Autismap structure map
• Legislation
• Autismap Articles
 



Initiative Location

Autismap.gr is not limited to a specific place of action as the website is accessible nationwide and its content serves the needs of its reference population without geographical restriction.


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Working with Organization

Autismap.gr has been designed based on the collaborations and the principles that govern them. At our side we have the support of autistic individuals, parents and clubs who shared our vision for the creation of autismap and welcome its existence.
In the context of the development of the website with the aim of designing and implementing new programs as well as the development of new services, frameworks of cooperation have been set with the following bodies: 1) Hellenic Union for Supported Employment, 2) Hellenic Dental Association, 3) Greek Society for Autistic Persons 4) Social Cooperatives of Limited Liability. 

Furthermore, there is a collaboration of forces with experienced clinical mental health professionals and not only, who work in both private and public institutions and are distinguished for their many years of experience in Autism Spectrum Disorders. They frame autismap both as members of the advisory team for the content of the individual topics, and as authors of articles. to understand and promote their quality of life, social inclusion and acceptance.

In addition, autismap.gr is supported by 3 informative sites (communication sponsors: Nevronas.gr, psychologynow.gr, socialpolicy.gr) with which close cooperation has been developed for the dissemination of content (articles, news, actions, etc.), thus highlighting specific concerns about the human rights of autistic people.

Autismap.gr has been set up with clear roles and clear procedures for each partner and is based on the principles of mutual trust, transparency and professionalism.

 


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Workers Participation

For the creation, the smooth operation and the regular updating of the website autismap.gr have assisted both the employees of the Child and Adolescent Center and more than 30 volunteers (https://autismap.gr/poioi-eimaste/gnoriste-mas). It is worth mentioning that for the section "Articles - Autismap", all the authors (scientists with many years of experience in autism) are volunteers, while the scientific / advisory team of autismap also consists of volunteers who are inspired by the vision to support and defending the rights of autistic people and their families.


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Benefits for Οrganization

The benefits from the operation of autismap.gr relate to the strengthening of the corporate social responsibility of the institution (with social benefits, described below), the strengthening of its scientific prestige as well as its establishment as a pillar for the protection of rights and the coverage of needs of people with ASD and their families.

Autismap.gr seeks to make autism understood and accepted by society and autistic people to have the support they need to enjoy basic human rights and equal opportunities, without discrimination, according to what the UN has declared for people with disabilities disability, promoting the improvement of the conditions and opportunities for integration of autistic people in society

Finally, an important distinction for the organization through the operation of the website, is its award as NGO of the Year in the category "Society" at the Hellenic Responsible Business Awards 2021.




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